A couple weeks ago I had my periodic PET scan which is a full body scan and lights up any cancerous areas. The doctor called to say they were seeing "something" in my brain and wanted to get a better look at it with an MRI. When my brother remarked that, "We know there's nothing in your brain", I wished for once that he was right! Unfortunately, the second scan showed 4 small lesions (cancer) - the largest measuring one cm. Even at that size it's bigger than I'd like.
The oncologist says radiation is the standard treatment but I've decided not to go with that option for now. I hate the idea of having my brain radiated and the side effects have the potential to severely decrease my quality of life. The other option that was offered was the combination of 2 oral drugs - Xeloda & Tykerb. Xeloda is a chemo drug which I'm currently on but is giving me horrible side effects...red, itchy, blotchy, swollen, painful rash on my face, head, hands and feet. I'm trying to live with this but it has at times been difficult to grasp anything with my hands and painful to stand or walk. So I'm not sure whether I can continue taking it. This is frustrating since it dwindles my medical options.
The doctor refused to give me a prognosis. He says with new drugs coming out all the time, no one can say for sure how long a person is likely to keep going. I have chosen to continue to be hopeful and live my life as fully as possible. The good news is that I feel perfectly fine (other than drug side effects). No headaches, dizziness or vision problems for now.
I'd appreciate your prayers for my family - esp. my girls as this is most difficult for them. Thankfully, I'm not feeling too anxious, depressed or scared. Surprisingly, it's usually the opposite - cheerful and upbeat. Not that I don't have my moments but obviously I'm being lifted above the circumstances through people's prayers. Thank you.