Walt again: Yvonne's oncologist was very encouraged by her CT & MRI scans - said they were much better than he expected. But the downside is that he can't explain the constant nausea. As he read all the results from the blood tests and the scans, he said there was no reason for Yvonne to be feeling as bad as she is.
I was very nervous about her beginning a new chemo regimen in her weakened condition, but I think the Dr. is correct that the cancer is causing the nausea somehow (it would explain why the nausea is getting worse), and the sooner she gets started again the sooner it will go away. Another reason to begin as quickly as possible is that the new cancer in her bones is already causing her some pain. Two years ago it was the bone cancer that rendered her nearly immobile until chemo killed it.
We are very grateful for everyone's continued prayer.
Thursday, June 12, 2008
Friday, June 06, 2008
Some good news
Walt again: We won't get the technical explanation until next Tuesday, but according to the oncologist's nurse the results from yesterday's MRI "look very good, and we're very pleased."
Thursday, June 05, 2008
Philippines & after
Hi, this is Walt filling in for Yvonne. We flew to the Philippines on May 26 to attend Megan's graduation. The week before we left Yvonne began having more than the usual difficulty with nausea and so had trouble getting food and liquid down. We went ahead with the trip but it was very difficult for her from the moment we left. Once there Yvonne was able to attend the 3 graduation related events - baccalaureate, Senior/Parent breakfast, and commencement, but the rest of the time could do little but sleep.
We had planned to spend 5 days after graduation in Boracay, a resort island in the central Philippines. The day before we were to leave, however, it was very clear that we needed to get Yvonne home as quickly as possible. Megan's host family, the Becks, went far beyond the call of duty and worked to get our flights changed, and we returned to Oregon on Monday, June 2.
By the time we got Yvonne to the Dr. on Tuesday she was severely dehydrated. She was given an IV to rehydrate her, along with steroids & anti-nausea med, and by the end of the day she was feeling much better. The Dr. scheduled her for CT scan on Wednesday & MRI on Thursday (today).
When she went for the CT scan Wednesday morning she was given two large cups of Barium drink to get down, and after that she was nauseated & ill. She began feeling better by the end of the day and asked for some leftover spaghetti (w/o the tomatto sauce). It felt so good to her to eat that she asked for more - which I gave her after waiting for a half-hour or so. This was the first time in two weeks she had felt hungry, and we took it as a good sign.
She ate the second spaghetti and was feeling good, and was up watching a movie with her sister when she suddenly started feeling sharp abdominal pain that quickly spread to her upper torso & radiated to the arms. After trying some antacids without success, we took her to the emergency room.
By midnight the pain had subsided quite a bit. The ER Dr. couldn't offer any concrete diagnosis, but suggested that, since stomach irritations and ulcers are common in chemo patients, the food she had eaten probably caused the reaction. She was given pain med, anti-gas-whatever it's called, and more anti-nausea med and sent home. She almost made it home before throwing up again. This morning she is awake and weak, but not feeling any pain.
While the ER Dr. was checking all her online records, he read us the results of the CT scan that had been done in the morning. As Yvonne suspected, there is new cancer in her lungs, liver, and vertebrae in her back - all very small spots so far, but still... She is scheduled to start a new chemo regimen this next week.
We are so grateful for all your prayers for Yvonne.
We had planned to spend 5 days after graduation in Boracay, a resort island in the central Philippines. The day before we were to leave, however, it was very clear that we needed to get Yvonne home as quickly as possible. Megan's host family, the Becks, went far beyond the call of duty and worked to get our flights changed, and we returned to Oregon on Monday, June 2.
By the time we got Yvonne to the Dr. on Tuesday she was severely dehydrated. She was given an IV to rehydrate her, along with steroids & anti-nausea med, and by the end of the day she was feeling much better. The Dr. scheduled her for CT scan on Wednesday & MRI on Thursday (today).
When she went for the CT scan Wednesday morning she was given two large cups of Barium drink to get down, and after that she was nauseated & ill. She began feeling better by the end of the day and asked for some leftover spaghetti (w/o the tomatto sauce). It felt so good to her to eat that she asked for more - which I gave her after waiting for a half-hour or so. This was the first time in two weeks she had felt hungry, and we took it as a good sign.
She ate the second spaghetti and was feeling good, and was up watching a movie with her sister when she suddenly started feeling sharp abdominal pain that quickly spread to her upper torso & radiated to the arms. After trying some antacids without success, we took her to the emergency room.
By midnight the pain had subsided quite a bit. The ER Dr. couldn't offer any concrete diagnosis, but suggested that, since stomach irritations and ulcers are common in chemo patients, the food she had eaten probably caused the reaction. She was given pain med, anti-gas-whatever it's called, and more anti-nausea med and sent home. She almost made it home before throwing up again. This morning she is awake and weak, but not feeling any pain.
While the ER Dr. was checking all her online records, he read us the results of the CT scan that had been done in the morning. As Yvonne suspected, there is new cancer in her lungs, liver, and vertebrae in her back - all very small spots so far, but still... She is scheduled to start a new chemo regimen this next week.
We are so grateful for all your prayers for Yvonne.
Wednesday, May 14, 2008
Hanging in there
Recovering from radiation was a much longer process than I expected. I continued to struggle for several weeks with nausea and vomiting and my head feeling hot all the time. It is now a month later and I'm back to wearing a wig (yeah!) and the nausea is 99% gone. Praise the Lord! That part was hard.
After throwing up my oral chemo pills, I decided to stop taking them. The doctor is talking about starting a new (to me) chemo IV regimen but can't really do it until we return from our trip to the Philippines in a month. There are times when I just want to stop taking ANYTHING. I'm not really giving up as much as just tired of the constant barrage of treatments. It wearies me at times to be in a daily battle for my life.
The radiation oncologist told us that statistically speaking my prognosis is about a year. He hurriedly went on to say that people don't always follow the statistics and there are many other factors to consider. Still, it's a sobering thought.
On a more positive note, I'm learning so much about praying - especially for healing. Several dear friends in our town have been giving their time to pray with me in person on an almost daily basis. This has encouraged me a lot. There are many times when I feel like Moses during a crucial battle where he was instructed to keep his hands lifted in the air in order to win. When he could no longer keep them lifted by himself, others came along and held them up for him. That's what these friends (and many others) do for me.
After throwing up my oral chemo pills, I decided to stop taking them. The doctor is talking about starting a new (to me) chemo IV regimen but can't really do it until we return from our trip to the Philippines in a month. There are times when I just want to stop taking ANYTHING. I'm not really giving up as much as just tired of the constant barrage of treatments. It wearies me at times to be in a daily battle for my life.
The radiation oncologist told us that statistically speaking my prognosis is about a year. He hurriedly went on to say that people don't always follow the statistics and there are many other factors to consider. Still, it's a sobering thought.
On a more positive note, I'm learning so much about praying - especially for healing. Several dear friends in our town have been giving their time to pray with me in person on an almost daily basis. This has encouraged me a lot. There are many times when I feel like Moses during a crucial battle where he was instructed to keep his hands lifted in the air in order to win. When he could no longer keep them lifted by himself, others came along and held them up for him. That's what these friends (and many others) do for me.
Saturday, April 12, 2008
An emotional day
Yesterday started very early with barking at 5:30am which woke Walt. He got up to check it out (we've had trouble with coyotes attacking the dogs) and found that our little white dog Angel was missing. He walked outside to where the noise had been but couldn't find her and couldn't see much. After showering and getting ready to leave for work he made a general search of the premises and took with him my sister's dog Phoebe who was very agitated. We've kept Phoebe for the past 3 years while LuAnne has been teaching overseas and the two dogs have become inseparable companions and playmates. No sign of Angel. Walt checked again on his break and lunch hour. She never turned up. It's now been a day and a half so we are sure we won't be seeing our sweet little dog again. Though she had her faults, it's always hard to lose a dog who loves you unconditionally.
The high point of the day was finishing my last radiation treatment. Yeah!!! Words can't describe how ecstatic I feel to be done at last. Those were the longest 3 weeks of my life. Although I only had 2 vomiting episodes, the nausea was an issue throughout. What a relief to have completed that part. I brought the office staff homemade cinnamon rolls to help me celebrate. The doctor explained that the radiation would keep on working on the cancer for several more months so they won't do an MRI until all that is "settled down" in about 2 months. In the meantime, I see my oncologist in a few days to go back on chemo.
My hair had finally grown back about 2 - 3 inches - enough to start looking like I might be able to get away with a short haircut. I was excited about this since we hope to go to the Philippines at the end of May for our daughter Megan's graduation from Faith Academy. In the tropical heat, I didn't want to wear a wig. Unfortunately I've been losing my hair in massive amounts this past week and the doctor assured me it would continue in spite of stopping the radiation. So for the third time I underwent the shaving process which my son-in-law never tires of doing for me :) This time, unlike the other times, I am unable to wear a wig to cover up my baldness due to radiation burns. My daughter is helping me experiment with scarfs. This part is hard for me. It's not only my vanity that suffers but I've always given it my best shot to not look like a cancer patient. Though I appreciate the sincere sympathy from onlookers and friends, I occasionally will find myself caught up in a bit of self-pity which does no good and dampens my otherwise can-do attitude. I prefer to envision myself as a healthy person with the strength, determination, and persistence to continue praying and fighting this through. But until my skin recovers, it'll be scarves and head coverings for me.
Did I mention it was an emotional day?
The high point of the day was finishing my last radiation treatment. Yeah!!! Words can't describe how ecstatic I feel to be done at last. Those were the longest 3 weeks of my life. Although I only had 2 vomiting episodes, the nausea was an issue throughout. What a relief to have completed that part. I brought the office staff homemade cinnamon rolls to help me celebrate. The doctor explained that the radiation would keep on working on the cancer for several more months so they won't do an MRI until all that is "settled down" in about 2 months. In the meantime, I see my oncologist in a few days to go back on chemo.
My hair had finally grown back about 2 - 3 inches - enough to start looking like I might be able to get away with a short haircut. I was excited about this since we hope to go to the Philippines at the end of May for our daughter Megan's graduation from Faith Academy. In the tropical heat, I didn't want to wear a wig. Unfortunately I've been losing my hair in massive amounts this past week and the doctor assured me it would continue in spite of stopping the radiation. So for the third time I underwent the shaving process which my son-in-law never tires of doing for me :) This time, unlike the other times, I am unable to wear a wig to cover up my baldness due to radiation burns. My daughter is helping me experiment with scarfs. This part is hard for me. It's not only my vanity that suffers but I've always given it my best shot to not look like a cancer patient. Though I appreciate the sincere sympathy from onlookers and friends, I occasionally will find myself caught up in a bit of self-pity which does no good and dampens my otherwise can-do attitude. I prefer to envision myself as a healthy person with the strength, determination, and persistence to continue praying and fighting this through. But until my skin recovers, it'll be scarves and head coverings for me.
Did I mention it was an emotional day?
Sunday, April 06, 2008
One more week to go
Still being plagued by nausea. In fact, had one episode of "tossing my cookies" just after Thursday's treatment. The new medication for this is only minimally helpful. Ice chips seem to help the most.
I mentioned fatigue last week that knocked me out (even while on a phone call). Turns out it was an old medication for nausea that I still had around and had taken. Drowsiness was listed as one of the side effects you might experience. Perhaps I should read the warning labels more carefully.
Our friends from church, Jeff & Lecia, have been our faithful prayer partners throughout this time. Others are praying as well, but Jeff & Lecia have been taking an hour or so every evening to lay their hands on me and pray for my healing. It's been a very uplifting time and brings me great joy - even on my "down" days.
Two weeks down and one more to go.
I mentioned fatigue last week that knocked me out (even while on a phone call). Turns out it was an old medication for nausea that I still had around and had taken. Drowsiness was listed as one of the side effects you might experience. Perhaps I should read the warning labels more carefully.
Our friends from church, Jeff & Lecia, have been our faithful prayer partners throughout this time. Others are praying as well, but Jeff & Lecia have been taking an hour or so every evening to lay their hands on me and pray for my healing. It's been a very uplifting time and brings me great joy - even on my "down" days.
Two weeks down and one more to go.
Monday, March 31, 2008
Radiation effects
The first week of whole brain radiation is over and I'm starting on my second week. Since I "breezed" through chemo, I was hoping that radiation would be easy as well. Sadly, it is much more difficult than I had anticipated. The nausea is what plagues me the most. It's fairly "low-grade" - if it can be measured by degrees. But to me, any kind of nausea is semi debilitating. I somehow find it hard to function at a normal level when my body is constantly hinting that vomit lies just below a shallow surface. The doctor was also surprised by this symptom since he claims he's giving me a low dose and most patients don't have the problem at this level. Lucky me! Medication has mostly controlled the issue.
Fatigue is the other problem. It's not been too bad except on occasion - but when it hits, it hits hard. I actually fell asleep while on the phone with a friend! (I'm talking sound asleep with dreams and everything!) A bit embarrassing to be wakened by my phone (I had it on speaker) asking me if I was still there. Thankfully my friend was very understanding about it. But I wouldn't recommend it as a friendship builder.
Six down, nine to go...
Fatigue is the other problem. It's not been too bad except on occasion - but when it hits, it hits hard. I actually fell asleep while on the phone with a friend! (I'm talking sound asleep with dreams and everything!) A bit embarrassing to be wakened by my phone (I had it on speaker) asking me if I was still there. Thankfully my friend was very understanding about it. But I wouldn't recommend it as a friendship builder.
Six down, nine to go...
Tuesday, March 25, 2008
Do NOT try this at home!
Yesterday was my first day to get the whole brain radiation. They had warned me that it would be a long day because of measurements, xrays, and basically setting it all up. And they weren't kidding! First on the agenda was making me a "mask". They take a porous material - you can see the many holes - and wet it down which makes it pliable. Then it is wrapped over your face giving you the feeling of being suffocated in spite of knowing there are holes through which you can breathe. Just when you feel it is really too tight, it is pushed down further on your face and bolted onto the table. This is not for the claustrophobic. I got to stay in this position for quite a while as they made marks, adjustments, raised and lowered the table, twisted and moved my face by fractions until everything was just right. Except that it wasn't so we repeated the process several times. The very kind technician gave me a break from the dreadful mask now and then but I always had to return to it.
We found out later that my radiation oncologist is a perfectionist and wanted to get things exactly right. Now if there's ever a time for perfectionism, I say this is it. As far as I'm concerned, he could have taken the whole day if the goal was precision. I consider my brain one of my favorite body parts and one which I'd like to be able to use in the future to it's fullest capacity. (Oops...this leaves me wide open for editorial comment and unkind jokes.)
I was given my first radiation treatment after all was set properly - the actual radiation only lasts for a few minutes - and was finally free to go. I felt fine until a few hours later when queasiness and a headache developed, eventually reaching the throbbing level. I took an Aleve but was still hurting until my friends prayed for me. Immediately the pain decreased and after more prayer, disappeared altogether! Today's treatment was much quicker and there's been no headache. Yeah! The doctor offered me a steroid drug to combat the brain swelling but assured me I wouldn't like the side effects so if I could tough out the headaches, I'd be better off. However, he gave me a prescription just in case.
The countdown begins. Only 13 more treatments to go!
We found out later that my radiation oncologist is a perfectionist and wanted to get things exactly right. Now if there's ever a time for perfectionism, I say this is it. As far as I'm concerned, he could have taken the whole day if the goal was precision. I consider my brain one of my favorite body parts and one which I'd like to be able to use in the future to it's fullest capacity. (Oops...this leaves me wide open for editorial comment and unkind jokes.)
I was given my first radiation treatment after all was set properly - the actual radiation only lasts for a few minutes - and was finally free to go. I felt fine until a few hours later when queasiness and a headache developed, eventually reaching the throbbing level. I took an Aleve but was still hurting until my friends prayed for me. Immediately the pain decreased and after more prayer, disappeared altogether! Today's treatment was much quicker and there's been no headache. Yeah! The doctor offered me a steroid drug to combat the brain swelling but assured me I wouldn't like the side effects so if I could tough out the headaches, I'd be better off. However, he gave me a prescription just in case.
The countdown begins. Only 13 more treatments to go!
Saturday, March 15, 2008
Fried brains, anyone?
I met with a radiation oncologist 2 days ago to see what could be done for the 4 tumors they found in my brain. My hope was to be able to have them individually "zapped", thereby sparing the rest of my brain from unnecessary radiation exposure. This is what made sense to my uneducated mind. What I learned is that the process to do pinpoint radiation is somewhat "barbaric" (a word the doctor himself used to describe it). A neurosurgeon drills holes into your head in order for a halo-type structure to be attached to it. The surgery is so exact that there can be NO movement. The more tumors you have, the longer the time that you will be immobilized. Since there are already 4 known tumors in my brain, the doctor suggested that it is likely that they could find more when a better, precise MRI would be done a day or two before treatment. That would mean possible immobilization all day long. But the main concern is not immobilization but effectiveness of treatment.
The doctor was quite clear that in his opinion the best course of treatment in my particular case would be whole brain radiation. It's when they give you a small dose of radiation over a period of time. In my case, 15 doses spread over 3 weeks. The side effects are hair loss - darn, it was just growing back - skin dryness, nausea, fatigue and cognitive issues such as memory loss and difficulty concentrating. I hate the sound of all this but it seems to be the lesser of evils. The doctor stated that I was fortunate so far in that I don't have any symptoms - headaches, dizziness, imbalance, etc - but said if tumors developed in my speech center, I could wake up one day and not be able to speak. Currently, the largest tumor is in my coordination center.
This has been a difficult decision to come to. I explained to the doctor that I didn't want to have radiation, then my life sucks, and I die anyway. He assured me that although he cannot make any guarantees, he did not believe this would decrease my quality of life but he did believe it could extend it and mentioned a couple of cases who are still alive today many years after treatment.
Because I've been taking an oral chemo drug which enhances the effects of radiation, I was instructed to stop taking it and then wait a week to allow the drug to get out of my system. My treatments are scheduled to start Monday, March 24.
Our friends from church, Jeff & Lecia, took me to a healing /prayer/worship service this week which was very uplifting. I love being prayed for and continue to pray in this direction.
The doctor was quite clear that in his opinion the best course of treatment in my particular case would be whole brain radiation. It's when they give you a small dose of radiation over a period of time. In my case, 15 doses spread over 3 weeks. The side effects are hair loss - darn, it was just growing back - skin dryness, nausea, fatigue and cognitive issues such as memory loss and difficulty concentrating. I hate the sound of all this but it seems to be the lesser of evils. The doctor stated that I was fortunate so far in that I don't have any symptoms - headaches, dizziness, imbalance, etc - but said if tumors developed in my speech center, I could wake up one day and not be able to speak. Currently, the largest tumor is in my coordination center.
This has been a difficult decision to come to. I explained to the doctor that I didn't want to have radiation, then my life sucks, and I die anyway. He assured me that although he cannot make any guarantees, he did not believe this would decrease my quality of life but he did believe it could extend it and mentioned a couple of cases who are still alive today many years after treatment.
Because I've been taking an oral chemo drug which enhances the effects of radiation, I was instructed to stop taking it and then wait a week to allow the drug to get out of my system. My treatments are scheduled to start Monday, March 24.
Our friends from church, Jeff & Lecia, took me to a healing /prayer/worship service this week which was very uplifting. I love being prayed for and continue to pray in this direction.
Thursday, March 13, 2008
Trip to North Carolina
Last week I was in North Carolina where I went to see a research scientist who specializes in cancer alternative treatments. Ultimately, I'm not sure if I will implement his suggestions but at least I came away with more options to chose from.
The trip turned out to be lots of fun. My dear friend, Liiza bought an airline ticket at the last minute in order to accompany me so I wouldn't be alone. I'm not shy about traveling by myself but it was much more fun to have my buddy with me. She also was my navigator while we drove around unknown streets and highways. I'd still be wandering around lost somewhere if she hadn't been giving me directions.
On one of the days I didn't go into the clinic, we toured the Biltmore estate - a massive castle like mansion built by the Vanderbilt family in the early 1900's. Their wealth in today's money is estimated at 93 billion and you can see how some of that was spent when you take the tour. It's a mind-boggling and fascinating structure. We also got in on freezing cold weather - waking up to heavy snowfall a couple of days.
Through some interesting circumstances, I was invited to stay with a lovely Christian family for my last 3 days after Liiza returned home. Some friends invited me to visit their mostly black church where we had a rockin' good time. That evening I enjoyed a tiny home church service. Everywhere we/I went we met friendly, lovely people who opened their arms to welcome us. So if you ever have a chance to visit Asheville, NC....I'd highly recommend it!
The trip turned out to be lots of fun. My dear friend, Liiza bought an airline ticket at the last minute in order to accompany me so I wouldn't be alone. I'm not shy about traveling by myself but it was much more fun to have my buddy with me. She also was my navigator while we drove around unknown streets and highways. I'd still be wandering around lost somewhere if she hadn't been giving me directions.
On one of the days I didn't go into the clinic, we toured the Biltmore estate - a massive castle like mansion built by the Vanderbilt family in the early 1900's. Their wealth in today's money is estimated at 93 billion and you can see how some of that was spent when you take the tour. It's a mind-boggling and fascinating structure. We also got in on freezing cold weather - waking up to heavy snowfall a couple of days.
Through some interesting circumstances, I was invited to stay with a lovely Christian family for my last 3 days after Liiza returned home. Some friends invited me to visit their mostly black church where we had a rockin' good time. That evening I enjoyed a tiny home church service. Everywhere we/I went we met friendly, lovely people who opened their arms to welcome us. So if you ever have a chance to visit Asheville, NC....I'd highly recommend it!
Friday, February 22, 2008
Bad news
A couple weeks ago I had my periodic PET scan which is a full body scan and lights up any cancerous areas. The doctor called to say they were seeing "something" in my brain and wanted to get a better look at it with an MRI. When my brother remarked that, "We know there's nothing in your brain", I wished for once that he was right! Unfortunately, the second scan showed 4 small lesions (cancer) - the largest measuring one cm. Even at that size it's bigger than I'd like.
The oncologist says radiation is the standard treatment but I've decided not to go with that option for now. I hate the idea of having my brain radiated and the side effects have the potential to severely decrease my quality of life. The other option that was offered was the combination of 2 oral drugs - Xeloda & Tykerb. Xeloda is a chemo drug which I'm currently on but is giving me horrible side effects...red, itchy, blotchy, swollen, painful rash on my face, head, hands and feet. I'm trying to live with this but it has at times been difficult to grasp anything with my hands and painful to stand or walk. So I'm not sure whether I can continue taking it. This is frustrating since it dwindles my medical options.
The doctor refused to give me a prognosis. He says with new drugs coming out all the time, no one can say for sure how long a person is likely to keep going. I have chosen to continue to be hopeful and live my life as fully as possible. The good news is that I feel perfectly fine (other than drug side effects). No headaches, dizziness or vision problems for now.
I'd appreciate your prayers for my family - esp. my girls as this is most difficult for them. Thankfully, I'm not feeling too anxious, depressed or scared. Surprisingly, it's usually the opposite - cheerful and upbeat. Not that I don't have my moments but obviously I'm being lifted above the circumstances through people's prayers. Thank you.
The oncologist says radiation is the standard treatment but I've decided not to go with that option for now. I hate the idea of having my brain radiated and the side effects have the potential to severely decrease my quality of life. The other option that was offered was the combination of 2 oral drugs - Xeloda & Tykerb. Xeloda is a chemo drug which I'm currently on but is giving me horrible side effects...red, itchy, blotchy, swollen, painful rash on my face, head, hands and feet. I'm trying to live with this but it has at times been difficult to grasp anything with my hands and painful to stand or walk. So I'm not sure whether I can continue taking it. This is frustrating since it dwindles my medical options.
The doctor refused to give me a prognosis. He says with new drugs coming out all the time, no one can say for sure how long a person is likely to keep going. I have chosen to continue to be hopeful and live my life as fully as possible. The good news is that I feel perfectly fine (other than drug side effects). No headaches, dizziness or vision problems for now.
I'd appreciate your prayers for my family - esp. my girls as this is most difficult for them. Thankfully, I'm not feeling too anxious, depressed or scared. Surprisingly, it's usually the opposite - cheerful and upbeat. Not that I don't have my moments but obviously I'm being lifted above the circumstances through people's prayers. Thank you.
Thursday, February 14, 2008
New chemo drug regimen
Two weeks ago my oncologist agreed with me that the IV chemo therapy I was on didn't seem to be working as we had hoped. I continue to have a breast tumor that doesn't seem very responsive to the chemo we were using. In light of that he switched me to an oral chemo drug (Xeloda) and ordered a PET scan to see what the progress has been so far. I've been on Xeloda before but was unable to continue it due to a severe itching / red rash it gives me on my face. However, we decided to try it again but added an allergy med along with it to try and combat that problem. I've already been through a one week on, one week off cycle and the first week ON was fine, but the week OFF was quite itchy and miserable. I've just now started the second cycle and am ON so will see how this goes. This time I will continue the allergy med even on the week OFF and see if I do any better. I really want to be on this medication because it has been shown to be fairly effective on my type of cancer, it's less harsh on my system and doesn't cause hair loss. It's also nice to be able to take it at home without the hassle of being hooked up to IVs for hours at a time.
Tuesday, January 29, 2008
Ready for a break
Last Thursday - Jan 24th - I started feeling some steady pain in my chest. Didn't think much of it until it became persistent and started working it's way up the pain Richter scale. Everyone knows not to mess around with chest pain and this being late in the day, I ended up making a visit to the emergency room of our local hospital. By the time I got there the pain was at a whole new level of intensity. In spite of this, within minutes the doctor assured us it was most probably NOT the heart (it wasn't) but a condition called Costochondritis - an inflammation of the cartilage that connects the ribs to the sternum. (According to my husband, this is similar to Costcochondritis, the inflammation in his brain - and wallet - when he goes to Costco.)
After bloodwork, x-rays, prayers and a simple over the counter pain reliever from my purse, the pain died down and they sent me home. I ran a fever the next day, then felt progressively better. I'll see the oncologist tomorrow and see what he makes of it - if anything. My personal take on it is that my poor immune system has had all it can take of chemo and is screaming for a break. There's that fine line between killing the cancer and killing the person.
Overall, I've done remarkably well with all the chemo I've been given. Six months' worth since starting this last program and on and off before that. But I've been hit by a couple of viruses going around which again emphasises that the ol' immune system ain't what it used to be.
Happily, my normal state of affairs is lots of energy, feeling good, and going strong. That's probably why I'm so frustrated when I hit a speed bump and have to slow down. Ah well....perhaps it's for the best.
After bloodwork, x-rays, prayers and a simple over the counter pain reliever from my purse, the pain died down and they sent me home. I ran a fever the next day, then felt progressively better. I'll see the oncologist tomorrow and see what he makes of it - if anything. My personal take on it is that my poor immune system has had all it can take of chemo and is screaming for a break. There's that fine line between killing the cancer and killing the person.
Overall, I've done remarkably well with all the chemo I've been given. Six months' worth since starting this last program and on and off before that. But I've been hit by a couple of viruses going around which again emphasises that the ol' immune system ain't what it used to be.
Happily, my normal state of affairs is lots of energy, feeling good, and going strong. That's probably why I'm so frustrated when I hit a speed bump and have to slow down. Ah well....perhaps it's for the best.
Sunday, January 13, 2008
Saturday, January 12, 2008
Monday, November 19, 2007
Guaranteed to offend some (but try to see the humor)
It all started with my complaint to the oncologist. How do I word this delicately? "Is there something you can recommend for dryness?" With the discovery that female hormones are a contributing factor to cancer growth in "female" cancers, one of the current treatments involves medications to slow or stop production of hormones. This results in menopause and all the fun symptoms that go with it, including dryness. (I'll let you figure that one out.)
"Unfortunately there's nothing medically I can give you, but I have a patient who has found a product that she feels is so helpful that she is passing the word on to other cancer patients. " At this point, the doctor pauses before continuing. "The only thing is,uhmm.....you have to get it from a porn website."
"WHAT???" I yell. "Are you joking?"
"I'm afraid not," he answers sheepishly.
But my discomfort overrides my concern about the location of the product.
"What's the name of this stuff?" I ask.
"It's called....Eros." He smiles out of embarrassment at having to say the word out loud.
I just laugh. "Of course it is."
He writes the name of the product on paper for me to take home and do with what I want. But I'm deathly afraid to access any porn site on my computer. I've just changed email accounts due to the amazing amount of disgusting spam I was receiving and I don't want to trigger anything that would cause a recurrence of that. But then, inspiration strikes.
At my former job, there were some women who occasionally liked to buy "naughty" novelty gifts as gag presents for office parties. So I called the office. "Patti, would you do me a favor and buy me something next time you go to a porn shop?" I explained the situation and what I needed. When I finished she said, "I haven't been in years but I'll take you." She assured me the store she knew of was "tasteful" and not sleazy. Yeah, right.
I protested and threatened to wear a disguise but in the end, reluctantly agreed. I also called ahead to be sure they had what I needed so we could get in and out quickly. Confusingly under the name Eros, there were quite a few options, all of which were just a befuddlement to me. The manager was very accommodating and said she'd set a variety of products under that label aside for me.
Fortunately when we arrived, we were the only ones there. Upon entrance, you must pass through some security rails which made a noise as we walked by. "Probably taking our photo," I lamented to Patti. Choosing from among the variety of Eros products took much longer than I would have liked as I tried with some difficulty to keep from seeing anything else. At last I made my purchase and dashed for the car all the while wondering, "Isn't there an easier way?"
I'm open for suggestions.
Sunday, November 04, 2007
Going, going, mostly gone
If I were a dog, I’d be a hairless
I’ve now had 4 rounds - going on 5 - of chemo (3 wks on – 1 wk off) since I started again this July. A new chemo drug was added to the mix for the past 2 rounds. The breast tumor which had grown quite large and was unresponsive to the first several rounds of chemo has finally begun to shrink. In fact, it’s close to HALF the size it was! Praise the Lord!!
There’s a wonderful couple from our church who has agreed to meet with me weekly to specifically pray for my healing. They both work full time as well as have children to raise and many other responsibilities so we have felt very blessed to have been given the gift of their time and prayers. Lecia has been visualizing God holding the tumor in His hand and His warmth melting it away like an ice cube. So we’ve been praising God for answered prayer.
Other than hair loss and some neuropathy (numbness) beginning in my fingers, I’ve had mostly no side effects from the chemo. My energy is great and I am pain free so can’t ask for much more. We have lots to be thankful for. In spite of no eyelashes.
Wednesday, October 17, 2007
A post from Feb 2007
In the past couple of weeks I’ve noticed a growing phenomenon. In spite of feeling fine almost all the time, there has been the occasional ache or pain which under normal circumstances would go completely unnoticed, but due to the fact that I have cancer now becomes a big deal. Never having been one to “freak out” easily over medical problems – just ask my girls how many times I have said, “You’ll be fine” even if evidence points to the contrary – it frustrates me to be worried so easily. On the other hand, how can it be helped? A few weeks ago I had a pain in my shoulder that grew in discomfort until I finally took a half tablet of Tylenol. (This is a big thing. If you ever catch me taking a WHOLE pill – call an ambulance.) I seriously considered contacting my oncologist to see about ordering an MRI but it was late on a Friday and I decided to wait it out through the weekend and see what transpired. The pain went away and never returned. I’ve since had other “tweaks” of aches and pain here and there, none of which ever stayed very long or deserved a half tablet of anything. But the fear has come every time. And the “what if’s”. I put away the list of songs I was collecting for my memorial service when I began to suspect I wouldn’t need them quite yet, but it’s a battle of the mind to resist going back to those thoughts when aches and pains arise. Fortunately they are quite rare.
Wednesday, October 10, 2007
Catching up
I've been very remiss about keeping up this blog. Several friends have reminded me (gently) that I should update it. So much has occurred that it's hard to know what to say so I'll summarize. Back in Feb or March, I noticed some lumps growing in my breast again - same area as before. Started with one, then 2, then 3. Soon they were starting to merge. Of course, I pointed this out to my doctor at each visit but he was not terribly concerned at first. Eventually, he started me on an oral chemo from which I got a horrible red, itchy rash all over my face. Only got half way thru the first cycle before having to discontinue. A PET scan was finally done which showed that the cancer had grown back in most all of the places it was before though not quite as bad as it originally was. But bad enough to need IV chemo again. Of course, this has led to the second round of head shaving and wigs.
The most recent PET scan (as of a couple weeks ago) showed mixed results. The tumor on the liver and in most bones was improved but some lymph nodes, thorasic spine, and breast tumors were worse. A new chemo drug has been added to the mix now and we'll see how that goes. In the meantime, I'm still exercising, taking my nutritional supplement, and doing a smattering of alternative things. The good news is that I feel fine with energy, stamina, and generally a good outlook.
This summer was an emotional roller coaster with Meg (our youngest) returning to Faith for her senior year, my sister, Lu returning to Saudi Arabia, and finding out that a woman who had the same cancer (with the same metastases) as I, had died. We had been "holding each other's hands" over the phone and praying for one another. She was a support to me and her death was devastating since she seemed to be doing well. Thankfully she was a dear Christian so she is with Jesus. But I miss Paula.
Wednesday, January 24, 2007
January Update
Since I’m doing so well these days, I don’t always have much to tell. But now I do have a couple more good news items. A year ago I had a bone density test which shows whether or not you have osteoporosis and the degree to which you have it. This was to get a baseline as I enter my “elderly” years. At that time, it showed my poor bones to be in the osteopenia range – a precursor to full blown osteoporosis. A year later – my bone density test shows improvement in all 3 areas tested. Two areas are back in normal range and the third is just a hair below normal. And this despite a bone cancer diagnosis!
On top of this, my last week’s tumor markers showed the most improvement so far – both well within normal range! Yipee!
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